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Wednesday, December 17, 2008

V is for Vitiligo



Since the last time I wrote about having vitiligo, I've gotten perhaps marginally less bothered by it. This is probably a good, even necessary thing, because, earlier this year, this woman I met at some library function said to me, "Oh, you have vitiligo, don't you?" very matter-of-factly. Six months earlier, I probably would have cringed, but I tried to respond in the spirit in which the question was asked.

Still, it bothers me somewhat. There was a picture taken of an event during Black History Month that I was leading. It was a black and white photo that ended up in my church's April 2008 newsletter. I recognized everyone in the picture except one person. That of course, was me.

It's still also damn inconvenient. Those of you in the colder climes will appreciate wanting to be out in the sun after several gray, morose days. Inevitably, though, I get burned, on any exposed skin, especially the top of my head and the back of my neck. I've become, quite literally, a redneck. Ironically, it's easier to protect myself in summer because the cues (the heat, the bright sun) triggers the use of the sunscreen, hat, and other accouterments.

One of the people who talked to me after the first time I wrote about my vitiligo said that she'd love me anyway, regardless of how I looked. But recently, she saw me and asked if my skin were getting gray. No, I replied patiently, it's the vitiligo. OH, she said.



ROG

9 comments:

ChrissyM said...

Thank you for sharing this with us and explaining a little bit about vitiligo to us.

Chrissy (ABC Team)

antigoni said...

I'm sorry that you suffer of that. I hope you get better.

Anonymous said...

I have something similar, in a smaller way. I have brown patches and streaks on my white skin. Once when I worked in a school, one of the children asked me if I were an alien. LOL!

I don't let it bother me too much, and the patches get lighter or darker at times depending on my thyroid function. But I understand - a little - how self-conscious you must feel.

Interesting post! Brave, too. :)

Anonymous said...

It is better thing to share your problems or ideas with other. Vitiligo is serious skin condition and may need a long period of time to be pigmented.
Leave stress and feel normal regarding your cosmetic appearance is the best technique to stop further increase of vitiligo. It is not my thinking but from a reliable vitiligo guide.

Anonymous said...

Vitiligo skin disorder demands cautious treatment and patience. Various vitiligo treatments are in practice among patients and doctors but the most suitable of them all is an anti vitiligo oil. The oil is in fact a unique blend of natural herbal extracts having absolutely no side effects. Anti vitiligo Oil™ is patent product for vitiligo skin disorder treatment, lost pigment, skin white patches. People can visit a website http://www.antivitiligooil.com for more information on vitiligo treatment and to view vitiligo skin disorder pictures.

Anonymous said...

The anti vitiligo oil is truly a remarkable product and a natural means to vitiligo cure, which leaves behind an everlasting smile on the faces of those who once suffered from vitiligo skin disorder.

Steve Hargadon said...

Hi, Roger. I'm helping to start a social network for those with Vitiligo. I hope you come and join us: http://vitiligo.ning.com/.

Anonymous said...

Fine info about vitiligo treatment. Thank and looking for more such informative post

abdul45 said...

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